{"id":4253,"date":"2026-07-04T15:03:21","date_gmt":"2026-07-04T15:03:21","guid":{"rendered":"https:\/\/bostonrelocationinsider.com\/?p=4253"},"modified":"2026-07-04T15:03:21","modified_gmt":"2026-07-04T15:03:21","slug":"their-children-are-too-sick-to-go-to-school-these-parents-are-fighting-for-them-to-get-a-better-education-at-home","status":"publish","type":"post","link":"https:\/\/bostonrelocationinsider.com\/?p=4253","title":{"rendered":"Their children are too sick to go to school. These parents are fighting for them to get a better education at home."},"content":{"rendered":"<article>\n<div>\n<p><span><span>T<\/span><\/span><span><span>IVERTON, R.I. \u2014 When Michaela Hillyard was born in 2020, doctors said her prognosis was grim.<\/span><\/span><\/p>\n<p>Read more <a href=\"https:\/\/bostonrelocationinsider.com\/?p=4251\">Trump pardons former Abramoff partner, 9 people convicted of violating vehicle emissions controls<\/a><\/p>\n<p><span>Her parents were somewhat prepared for the news. Two days before Christmas the previous year, when Abaigeal Hillyardhad an ultrasound at18 weeks, she and her husband, Joshua Hillyard,learnedMichaela\u2019s brain did not split properly in utero, a rare condition caused by a missing portion of her 13th chromosome. They wouldn\u2019t know exactly how it would affect her development until she was born.<\/span><\/p>\n<p><span>\u201cWe were advised \u2026 \u2018Don\u2019t get a stroller, you\u2019re not going to be taking her home,\u2019\u201d AbaigealHillyard said in an interview in her living room earlier this year. \u201cBy the grace of God, we\u2019ve had three strollers now. And she\u2019s outgrown this one.\u201d<\/span><\/p>\n<\/div>\n<div>\n<p><span>But, Michaela\u2019s disabilities are numerous: She has a feeding tube, is nonverbal, and can\u2019t yet walk. She doesn\u2019t have thumbs.<\/span><\/p>\n<p><span>And at 6 years old, Michaela also can\u2019t go to school in person, her parents said. Her heart, lungs, and kidneys are affected by her condition, and her doctors say she is too immunocompromised for the inside of an elementary school. <\/span><\/p>\n<div>\n<div>\n<div><span>Get Rhode Map<\/span><\/div>\n<div><span>A weekday briefing from veteran Rhode Island reporters, focused on the things that matter most in the Ocean State.<\/span><\/div>\n<div>\n<div><label>Enter Email<\/label><\/p>\n<div><button>Sign Up<\/button><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p><span>She\u2019s also, her parents said, not getting the education at home that she\u2019s entitled to under a Rhode Island requirement for students who can\u2019t go to school for medical reasons.<\/span><\/p>\n<p><span>While the Tiverton schools do provide some services, such as physical therapy and speech therapy, Michaela has never had the five hours a week of instruction required by the Rhode Island Department of Education for homebound special education students. The Hillyards are among multiple families who said they have had to fight to get those services, and feel their children are being left behind. <\/span><\/p>\n<p><span>\u201cAs a parent, you get angry,\u201d said Abaigeal Hillyard. \u201cIt\u2019s a place that\u2019s supposed to keep your child safe, help your child develop, invest in their education, care about them.\u201d<\/span><\/p>\n<p><span>She said a retired special educator currently comes to the home for two hours per week, but Michaela has never received the full five hours required. Abaigeal  Hillyard believes her daughter could learn to communicate, potentially using American Sign Language, if she had more time with a teacher.<\/span><\/p>\n<p><span>\u201cTo deny her access to communication and language is gut-wrenching to me,\u201d said Abaigeal Hillyard, who is a Navy commander workingin human resources. Her husband stays home to manage Michaela\u2019s vast medical needs.<\/span><\/p>\n<p><span>Tiverton Superintendent Chris Haskins said he could not legally comment on individual children, but said the district was committed to educating homebound students.<\/span><\/p>\n<p><span>\u201cLike many school districts, recruiting and maintaining specialized staff can present challenges at times,\u201d Haskins said. \u201cWhen staffing needs arise, the district works diligently to ensure that qualified personnel and related service providers are available to meet students\u2019 needs and fulfill all legal obligations.\u201d<\/span><\/p>\n<p><span>The challenge of educating homebound children is not unique to Tiverton. The USeducation system is alreadystretched thin and struggles to provide for children of all kinds with special needs. Homebound instruction is particularly strained, experts told the Globe. Most such placements are temporary; a student is sick with cancer, has surgery, or mental health issues that keep them out of school for weeks or months. <\/span><\/p>\n<p><span>It can be difficult to have enough staff on hand to visit students\u2019 homes sporadically.<\/span><\/p>\n<p><span>\u201cThe hours are short, and when people are getting hired, they want hours and a set salary,\u201d said Deanna Conley, a former special education teacher who now helps Rhode Island families through her business, Prosper Special Education Advocacy Services. \u201cYou can\u2019t say, \u2018Oh, I need you for two weeks,\u2019 or \u2018I might need you for two months,\u2019 or \u2018I just need you from 3 to 4 on Tuesday and Friday.\u2019\u201d<\/span><\/p>\n<p><span>Conley is working on the problem with state Senator Lou DiPalma, starting by surveying parents whose children were absent for extended periods for medical reasons. Officially, the state Department of Education says there were 162 children enrolled in homebound or hospital instruction at some point this pastschool year, 34 of whom are special education students. <\/span><\/p>\n<p><span>Conley said those numbers are woefully undercounted. <\/span><\/p>\n<p><span>Her survey of families found what she called \u201creluctant homeschoolers\u201d \u2014 parents who pulled their children out of the school system altogether after extended absences, sometimes out of fear of truancy court, or because their district wasn\u2019t providing the services they needed. <\/span><\/p>\n<p><span>Those students aren\u2019t counted in the state\u2019s numbers. Neither are students who were chronically absent for mental health issues, rather than physical health, and did not officially have their placements changed to homebound instruction.<\/span><\/p>\n<p><span>\u201cThis is a much bigger problem than I think people are realizing,\u201d Conley said.<\/span><\/p>\n<p><span>One reluctant homeschooler is Danielle Fallon, who lives in Westerly with her husband and their 6-year-old son,Asher.<\/span><\/p>\n<p><span>\u201cI never wanted to homeschool,\u201d Fallon said. \u201cI had to choose between his health and safety, or public school.\u201d<\/span><\/p>\n<p><span>Asher, a kindergartner at Dunns Corner Elementary School, has Down syndrome, autism, epilepsy, and other medical conditions. He hasn\u2019t been to school since February. After a series of hospitalizations earlier this year, his doctor recommended homebound instruction to allow him to recover. <\/span><\/p>\n<p><span>But Fallon hit roadblocks. The district said it would  provide \u201cup to\u201d five hours a week of tutoring for homebound students, according to emails reviewed by the Globe, but would not come to their home. She could either bring Asher to school after hours \u2014 which her doctor warned against because of germ risk \u2014 or do virtual tutoring, a tough task for a kindergartner.<\/span><\/p>\n<p><span>From February to May, Asher received only two hours of virtual instruction total, in four 30-minute sessions, Fallon said. She later learned that state regulations required a minimum of five hours per week for special education students in elementary school.<\/span><\/p>\n<p><span>\u201cI was so focused on getting my son healthy, I just kind of trusted that the school was going to do what needed to be done,\u201d Fallon said. She initially considered sending him back to school with a one-to-one nurse to help keep him healthy, but wanted it to be the one the family had already hired. When that wasn\u2019t possible, she gave up.<\/span><\/p>\n<p><span>\u201cWe pulled the plug on June 3,\u201d Fallon said. \u201cWe sent in the letter to withdraw him.\u201d<\/span><\/p>\n<p><span>She has retained a lawyer, Ellen Saideman, to file a complaint with the Department of Education, alleging the district failed to provide the requiredfive hours a week of schooling.<\/span><\/p>\n<p>Read more <a href=\"https:\/\/bostonrelocationinsider.com\/?p=4249\">How will the Patriots follow up an unexpected Super Bowl trip? An answer to that and other too-early predictions.<\/a><\/p>\n<p><span>\u201cIt\u2019s not clear to me why they did not follow that regulation,\u201d Fallon said. \u201cI had to fight for the bare scraps of what he got for tutoring.\u201d<\/span><\/p>\n<p><span>Westerly Superintendent Mark Garceau said the district denies Fallon\u2019s claims, but said he is legally prohibited from sharing more information due to confidentiality laws. He did not answer questions about Westerly\u2019s homebound policies in general.<\/span><\/p>\n<p><span>Two days after the Globe reached out to Garceau, Fallon said the district offered to provide speech, occupational, and physical therapy services to Asher, and would allow his nurse to attend. She still plans to file a complaint about the lack of homebound schooling.<\/span><\/p>\n<p><span>Lisa Foehr, chief of teaching and learning at the Education Department, confirmed that special education students in homebound or hospital instruction must receive a minimum of five hours per week of academic instruction at the elementary level, and six hours in middle and high school. Other services such as speech and physical therapy don\u2019t count toward the five hours.<\/span><\/p>\n<p><span>The rules are less specific for homebound students who are not in special education. Districts must have a policy to educate students who are out of school for medical reasons, but the state does not dictate how many hours they must provide. (All of the children in this story are special education students.)<\/span><\/p>\n<p><span>Foehr said the Education Department has not received a formal complaint about homebound education issues, but has met with Conley and DiPalma about the problems.<\/span><\/p>\n<p><span>\u201cIt\u2019s not completely surprising to me, given the low numbers of students we\u2019re talking about across the state, that at an individual district level this may pose a challenge,\u201d Foehr said. \u201cWe have a nationwide teacher shortage.\u201d<\/span><\/p>\n<p><span>Fear of truancy has also prompted families to leave the school system. Liz Peckham, a Tiverton mom whose 15-year-old son, George, has autism and anxiety, said he hasn\u2019t been to school since seventh grade. He\u2019s supposed to be a sophomore in high school.<\/span><\/p>\n<p><span>George is smart, talkative, and charming, Peckham said, but was prone to behavioral issues that often caused a scene in school. He sometimes refused to go in. One day in middle school, when a teacher made him stop watching YouTube videos on his school-issued Chromebook, he had a \u201ccomplete meltdown,\u201d Peckham said. He threw his desk, and it wasn\u2019t the first time.<\/span><\/p>\n<p><span>George was suspended, Peckham said. She felt awful, but also didn\u2019t understand why he had access to videos duringclass in the first place. George\u2019s IEP called for a one-on-one aide, but the district did not have the staff to provide one, she said. <\/span><\/p>\n<p><span>\u201cAs much of a gigantic loss as it is, I couldn\u2019t send him in anymore,\u201d Peckham said. Fearing truancy court, she pulled George out and signed up as a homeschooling parent in 2022. At the time, she said,she didn\u2019t know that homebound instruction existed.<\/span><\/p>\n<p><span>\u201cI don\u2019t want to homeschool,\u201d Peckham said. \u201cI don\u2019t feel qualified to make educational choices.\u201d Since George has an IEP, she thought she would still get some support from the district, but she said her emails often go unanswered. <\/span><\/p>\n<p><span>\u201cSpecial ed parents like me are just treading water,\u201d Peckham said. George tested at grade level last year despite no formal schooling, and she knows he could go far. She got emotional talking about students like him.<\/span><\/p>\n<p><span>\u201cJust because they can\u2019t thrive in a school setting doesn\u2019t mean they don\u2019t deserve to learn,\u201d Peckham said. <\/span><\/p>\n<p><span>It is those families Conley and DiPalma hope to help as they craft a proposal for a statewide homebound instruction program. The idea, modeled after similar programs in Maryland and Virginia, is for a centralized hub that hires full-time teachers and dispatches them to students\u2019 homes or hospital rooms, with a goal of supporting them so they can get back to school in person.<\/span><\/p>\n<p><span>\u201cWe\u2019re really envisioning a program that helps keep a bridge between home and school, so that they\u2019re not lost at sea,\u201d Conley said.<\/span><\/p>\n<p><span>It\u2019s not clear how much the program would cost. It would likely require approval from Rhode Island lawmakers.<\/span><\/p>\n<p><span>\u201cThere are children in all of our districts that are not receiving an adequate education they\u2019re entitled to,\u201d said DiPalma, who is chair of the Senate Finance Committee. \u201cWe need to address that.\u201d<\/span><\/p>\n<p><span>Abaigeal and Joshua Hillyard said they would eagerly sign upfor such a program. Their current situation causes stress and sleepless nights and sometimes drives a wedge between them.<\/span><\/p>\n<p><span>Joshua Hillyardwants to walk away from the district, while his wife wants to keep fighting.<\/span><\/p>\n<p><span>\u201cNot because I don\u2019t want her to get the services,\u201d he said of Michaela. \u201cBut there is an active defiance on their part.\u201d<\/span><\/p>\n<p><span>The Hillyards do see Michaela making some strides. She\u2019s started tilting her head to indicate \u201cyes\u201d and \u201cno.\u201d She responds well to music, and loves a modified dance party. She\u2019s silly and laughs whenever her dad enters the room and loves when the car hits a pothole, prompting a deep belly laugh that \u201csounds like she smokes a pack a day,\u201d Abaigeal Hillyard joked.<\/span><\/p>\n<p><span>But with every improvement, there\u2019s a setback. Michaela\u2019s speech therapist is leaving, and they aren\u2019t sure if Tiverton will send a replacement. The district struggled to provide one in the first place; Abaigeal Hillyard found their current speech therapist by crowdsourcing on Facebook.<\/span><\/p>\n<p><span>\u201cLife would be a lot easier if I didn\u2019t have to advocate so strongly and so consistently,\u201d Abaigeal Hillyardsaid. \u201cMaybe I\u2019m being silly, thinking I can make more change than I ever really could. But my purpose for staying in the fight is to try to help things be better for kids like Michaela.\u201d<\/span><\/p>\n<p>Read more <a href=\"https:\/\/bostonrelocationinsider.com\/?p=4247\">How Jaylen Brown\u2019s contract likely figured into the Celtics\u2019 decision to deal him to the 76ers<\/a><\/p>\n<\/div>\n<\/article>\n","protected":false},"excerpt":{"rendered":"<p>Multiple families told the Globe they have had to fight to get the five hours a week of instruction required by the Rhode Island Department of Education for homebound special education students. <\/p>\n","protected":false},"author":1,"featured_media":4252,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-4253","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-politics"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Their children are too sick to go to school. These parents are fighting for them to get a better education at home. - Boston Relocation Insider<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/bostonrelocationinsider.com\/?p=4253\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Their children are too sick to go to school. 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